What is MND?

Motor Neurone Disease is a wasting disease. It attacks the nerves that control movement in different parts of the body. There have been advances in research in recent years which gives hopes that prevention or cure may be found. I am raising funds that will contribute to research and support of sufferers in the Bournemouth area. For more information see MNDA HQ site and the local branch at East Dorset and New Forest MNDA branch. For details of the ride follow this link: Paris to Geneva. This will be in memory of my mother and Ruth's father, both of whom suffered with MND.

Saturday, 28 July 2012

Castlepoint has happened.

The Castlepoint event has come and gone. It has brought in about £240 which is OK, but not as much as I would have liked to have raised. But a big thank you to everyone from the local MNDA branch who helped out.


The weather was good - mainly sunny but not too hot.So we arrived at 8am to set up and by 9 all was ready. I started pedalling and waited for the people to come along. And waited some more. The numbers of people passing did pick up a bit by 11am, but I think everyone was too busy with the shopping to stop. Thank you to everyone who did stop and paid the £2 to take a guess at the distance.


It was encouraging to see Mike and Michelle come along. Mike was in good spirits as usual and held a bucket for passing trade. Then he had a butterfly painted on his hand by the stall next to us. He was able to stay for a couple of hours.


We had one or two people who came along who had had recent experience of family or friends who have been affected by MND as well. They wanted help and advice so having some from the branch there was a real advantage.


I took a 5 minute break in the morning, 30 minutes at lunchtime and 20 minutes in the afternoon. So the pedalling time was just about 7 hours. And the distance? 115.9 miles. The turbo wasn't on a high setting, but I feel very happy to have completed a distance that is 15 miles further than any ride before. So it has been a good day combining fundraising with a day's training. I feel tired but not completed done in.


A number of friends come along to encourage me - that you. One of these was Amy who, I think, came to check up that I was working hard enough.


And the competition winners, in order of choosing their prizes are Des Allison, Susan Delaney, Clare Busst, Judith Mills, Mike Spittle, Derek Sercombe and Mike Hardy. I am in the process of contacting everyone which may take a couple of days or so but you will hear from me.


And here is the usual request - if you haven't sponsored me, please do so.


Wednesday, 25 July 2012

Castlepoint Cycle Challenge

I don't normally get round to two posts in a week, but I wanted to do a short one to mention the Castlepoint event this Saturday, 28th July.


It is always difficult to ballance the fundraising and training, not to mention the rest of life. But, back in September, it occurred to me that I could combine training and fundraising by arranging a competition at Castlepoint shopping centre. So this Saturday, I will be putting the bike on the turbo trainer outside Marks and Spencer's and cycling for about 7 hours between 9am and 5pm. Those of you who are good at arithmetic will notice that this is actually 8 hours. But I will take breaks from time to time and will need a bit longer at lunchtime to refuel.


For £2 per guess (3 guesses for £5), anyone walking past will be invited by my younger daughter Rachel (plus others) to estimate how far I will go in the time. There are some good prizes that have been very kindly donated by various people.


So if you are in Bournemouth/Poole, take an hour off from watching the Olympic road race and come and throw tomatoes (and cash) at me. All the money raised at this event will be given to the local brnach of MNDA for support of some of the 35 local people who have MND.


And if you can't make it but want to make an entry, put your donation on JustGiving and put your guess(es) in the message and they will be included in the competition.


Winners will be notified over the weekend and will be able to choose a prize n turn. Winners names will be put in a post in this blog as soon as possible.


Prizes are:

Shiatsu Deluxe Massage Chair donated by JMLDirect.com (Value £99)

£50 vouchers for Aruba restaurant in Bournemouth

Waldo Pancake goods in a Waldo Pancake Mag Bag (Value approx £45) from www.reallygood.uk.com

‘the bright side’ Household goods in a ‘Hello Beach’ bag. (Value approx £40) from www.reallygood.uk.com

£30 Sainsbury’s vouchers

£30 Training session with Amy Williams (my personal trainer) www.amywilliamspt.co.uk

Sunday Lunch for 2 at Hotel Piccadilly in Bournemouth (Value £26)



Sunday, 22 July 2012

I wish I had Wiggins' legs!

After the exertions of the last two weekends, yesterday's excursion was just a short 35 mile ride around Poole and Bournemouth, taking in Sandbanks and Hegistbury Head. So not too taxing, but including all those short steep hills that the seafront has to offer here. The one up from Alum Chine is probably the steepest, although Branksome Chine comes a very close second and Boscombe pier a very close third. They all get the heart rate up a bit. Haven Road in Poole is also pretty good.


During the week, there have been a couple of gym visits that have been a bit on the stiff side. In the wake of commentary on the tour de france, I decided that I had better start getting serious about the long mountain climb we have in front of us. One of similar gradient and length (12 km at 7.7%) was described as tough and would leave riders 'all over the mountain'. If this is true of these amazing professionals, it suddenly came home that it might leave me all over the mountain. Not a pretty prospect .. So I forced myself to set the static bike on the maximum resistance and do 12km. The first time it took 48 minutes. Friday it took 42 minutes. Still about twice as long as the professionals, but encouraging.


And speaking of the professionals, Isn't the tour proving amazing. Wiggins performance yesterday was something else. To win the time trial by 76 seconds is just unbelievable!


So yesterday has been more mundane matters. Ordering fence panels because three are now broken and my neighbour has been very patient. (B&Q have a lot to learn about customer service. I hate going in there. It always takes about four times as long as it should.) Various other things that have needed doing.


I was able to call in and see Mike Hardy in the morning. Mike lives at the top of our road and was diagnosed with MND 9 years ago. His is one of the slow forms, but he is now completely dependent on the wheelchair and his carers. He is always so amazingly cheerful and copes so well with his problems. He now has a device that allows him to type a sentnce and then have it pronounced for him. So although he has not been able to speak much for the last two years or more, he is able to have a conversation with you. Once again it brought home the very practical difference that can be made in peoples' lives with the money that is being donated. His wife is his full time carer.


And this evening there has been a prom to listen to on BBC4. Beethoven symphnoies 3 and 4. I haven't heard number 4 for many years and, although the Eroica has always been a favourite since my early teens, it still has evokes a powerful emotional response. It struck me that the last movement must have been a model for the last movement of Brahms 4th symphony - that wonderful great passacaglia movement.


Enough of my meanderings. Remember to sponsor me if you haven't already done so and give more people like Mike a chance of as normal a life as possible when living with MND.


Sunday, 15 July 2012

So this is a crowded island, is it?

81 miles in the Yorkshire dales and for about 55 of those miles we hardly saw another soul except a few at the top of Tan Hill. The Inn there is said to be the highest in the UK - I have no reason to doubt it. It is also the only place for about 20 miles in any direction where you can buy anything at all, let alone anything to eat. There were sheep, of course, but they didn't seem to understand much English when spoken to.


This was a super ride. And for all but 5 miles, the weather was kind to us. It took in North Yorkshire, Co Durham and Cumbria. Only three of us were able to make this ride for various reasons. So John, Clare and I met up in Richmond for a prompt start at 8:30.
The first 20 yards were fine - slightly downhill. Then Clare said we had to turn right and we immediately found ourselves on a vertical hill going up. This set the scene for the next 40+ miles. The hills varied from steady to steep - they went down as well as up, of course, but the down does not last long compared with the up. The 'Stang' was the worst with a nasty sting in its tail. 'Tan hill' was the longest, but at least there was the prospect of something to eat at the top. If you ever find yourself near it, you must go in Tan Hill Inn to experience the appalling customer service. But when there is no competition for 20 miles around, you don't need to bother about that, I suppose. This marked the 25 mile point and at that stage we had already done about 3000 feet of climb.


A few more bits of uphill came along with the most wonderful scenery. And unlike previous trips up here, we could actually see it. Once again, this creation in which we live is quite amazing. At the top of another hill we met two other cyclists coming the other way. It was John who cracked first and asked the inevitable 'How far are you going?' We were pleased to hear they were only doing 60 miles. The trick is then not to say how far you are going but wait for them to ask. Much more satisfying (as long as you win). That was a nice moment this time and, as it happened, we saw them later on going the other way, so were able to wave at them again. But at the bottom of the hill they had just come up, I had to admit secretly that I had some admiration for them. It was most enjoyable going down it!


Next stop was Hawes at 54 miles, in time for a late lunch - that is normal when Clare arranges the route. This 'lunch' was at 2:30pm - last time it as at 4pm. We found somewhere that did what must be the best soup in the world with an amazing decoration piped on the top (picture courtesy of Clare). We could have spent a bit longer there, but there is always more cycling to be done.


At 65 miles came the decision point. Do we do another 2500 feet of climb or settle for just 1500 feet. Independently, Clare and I had already opted for the lower way. We could have done the harder one, but sometimes it is better to play things safer. John is obviously much more reckless. So we took seperate routes from the road that leads to Castle Bolton where John worked out how to use the auto mode on my camera. Clare and I managed to find the one cloud that had rain in it (it is just starting to get itself ready in the background), John missed the cloud but found the big hills. He later told us that he would have preferred the rain. I'm not sure I wouldn't have preferred the hills. The ones we had were still testing and with the water running down the road, it was again a case of slower down than up. Having said that, a visit to Yorkshire definitely seems incomplete without the downpour. Come to think about it, sitting on a bike and staying dry is a pretty distant memory in any county.


But that did not destroy the memory of what was a most enjoyable, if somewhat tough, ride. All necessary to be ready for the 330 miles in September! Please make the training all worthwhile by sponsporing me.!

Sunday, 8 July 2012

Plastic surgery may be needed.

I have lost count of the number of people who have said something along the lines of "Rain is refreshing". The next person who says that risks having to consult a good plastic surgeon.


Yesterday was the day of the Wight Ferry Epic. 95 miles taking in the Isle of Wight. When we signed up for it (in March), we were thinking more about how much sun tan cream to take. All eyes on the weather forecast as the week progressed and from day to day it varied. However, by Friday evening it was looking pretty conclusive - RAIN. Up at 5:20 and out of the door with Alex at 6:20, arrvive at Brockenhurst 7:00 and the forecast was confirmed. Wiggle (the organisers) realised this was going to slow us up and shortened the course by 18 miles. You just can't go fast downhill when it is wet because it is so easy to slip.


The first 14 miles was actually quite pleasant. The rain was patchy and only light. But by the time we arrived in Yarmouth, that changed. The rest of the day it just rained. The next 26 miles or so were all into the wind and rain. It was very unpleasant. The wind made it very hard work up the hills (some quite testing) and the rain washing sweat from my forehead (sorry) into my eyes which made them sting badly. I was begining to run out of steam and Alex was having to wait for me regularly.


Then came the food station at Ventnor Rugby Club and this meant two things. (1) Food (obviously) and (2) a change of direction. There was still two or three miles into the wind, but then we turned east and started on the long hill. With the refuelling and the wind behind us, I felt a new man. I was always in Alex's wake and he would have completed in around 20 minutes less, left to his own devices. But at least I didn't feel totally exhausted any longer. So back to Yarmouth via Freshwater and refreshsments in the school.


If we hoped that the last section on the mainland would be less wet we were wrong. It was just as bad. There were still large puddles, inches deep, across even the B roads. But soon the sign saying 10km to go loomed up. JOY! Less than 30 minutes to go. A couple of ponies to say hello to. One other cyclist to catch and pass and then the finish line. Just to round it off, as soon as we crossed the finish line, it stopped raining.


So I can tell you rain is NOT refreshing. It is thoroughly unpleasant. But somehow, I still enjoyed the ride and we were back home by 17:00


I'm having to put in a lot of work to be ready for Paris/Geneva and when the time comes, if is is tipping down with rain, we'll still have to do it. It is for a cause that is not so well known as other ones, but just as worthy. Click here to go to my JustGiving page.

Sunday, 24 June 2012

Heading for the hills.

This was my first visit to Sheffield. I have been past it many time on ths M1, but never had a reason to go into the city until now. It was good to meet up with John again for only the second time since the unfortunate experience on the London to Paris ride two years ago. Despite not having ridden a bike a year, he was keen to arrange the route and join in for the first 40 miles.

And according to the BBC weather forecast, the day was set to be quite good. I wonder if John (Bollada) has a brother who is a weather forecaster (See the entry for 20th May). The promise of dry weather with just a shower at the end of the day quickly evapourated as the black clouds rolled across. There was also a stiff westerly breeze to fight against after the late morning break and at one time, there was what felt like small hailstones in the rain as well. Not quite the York proportions of last year, but still enough to make us shelter under a tree for a few minutes at one stage. The weather was about as dry as the Chilterns afternon ride was flat on 19th May.

John promised us HILLs and he didn't disappoint us. As you can see from the profile, there is nothing flat in this ride, You are either going up or down. The morning was a series of climbs with shorter downhills in between. In the afernoon, there was a good downhill before the 'Surprise' (which is what the locals call it) - about 800 ft of cimb in 3 miles. Not excessivley steep, but it just kept going. Just what the doctor ordered as preparation for the climbs on the last day of the ride in September. This was 60 miles - the profile made it 59, but the least any of us clocked was 60.5. So not as long as previous rides, but pretty testing, nonetheless.

When the rain did stop from time to time, we were reminded what a lovely part of the world this is. From the tops of the hills the views are first class. There is so much to see in these islands that we really don't need to go abroard. As long as we remember the waterproofs, we can be content with the wonderful creation in this part of the globe.

There were five of us this time - John (Bollada), Alex (characteristically eating), John (Bush), Clare and me. This was at the top of one of the hills taking in the view above. Notice the next lot of rain sweeping in from the west about to dump itself upon us.

The next big test is the Isle of Wight Ferry Epic on 7th July. 100 miles starting in Brockenhurst, to Lymington, round the Isle of Wight and then back. That is going to be even tougher.

This challenge is taking a lot of preparation and hard work. It is for a cause that is not so well known as other ones, but just as worthy. Click here to go to my JustGiving page.

Sunday, 17 June 2012

A day at RHS Wisley

I'm not a gardener - Ruth will tell you that. But I did enjoy the visit to Wisley on Saturday. The plants were very nice of course and the pictures show that. If I hadn't forgotten that I had the camera with me, there would probably have been far more to choose from. But what made it special was meeting some of the people that I have been in touch with since starting to raise funds for MNDA. Four with MND were there together with carers and friends. And what struck me was that despite their difficulties, they spent most of the time laughing. Of course, there are times of frustration as abilities slowly deteriorate, but they are examples to those of us who complain at far lesser problems.

So who was there? First, there was Maria meeting her friend Jackie for the first time. Together they run the facbook page Motor Neurone Together We Stand. Maria has been diagnosed with MND for about a year. It is usual to talk in terms of diagnosed time rather then when the disease started becuase diagnosis takes so long. And very often, when the diagnosis comes through, the GP has not met MND before and doesn't know what to advise. This is why MNDA and the local branches are so important. They can give information and advice about what to expect, how to cope and where to find help. Maria was in her wheelchair. She and Terry are getting married in six weeks time.

Then there were Tina and Liam, both a bit younger than us and both at a stage where speaking is difficult although use of hands and arms is good. Liam runs a web site that is aimed at givng advice and help to other disabled people. Pauline was also there. She has a blog. With her, although speech is good, she is now unable to write very much.

MND affects different people in different ways and therefore presents different problems and challenges.

It is for people like this and those that care for them that I am aiming to raise as much as possible. There is more equipment available these days to help with the quality of life that they experience, but these devices can be expensive. Pauline is trying a new App that will open the front door and control the TV. It is difficult to imagine life without just being able walk to the frnt door and open it. A few months ago, I went to see Mike at the top of our road. It took him about 5 minutes to do just that.

I meant to take a photo of all four together - but forgot until it was too late. So I hope Maria/Jackie won't mind my using their picture ... If you haven't made a donation yet, please do. When you meet the people with MND, you will see why it is needed.

So no cycling yesterday, But a worthwhile day - plenty of hills next week planned in the Sheffield area.